Page 361 - SAHCS HIVMed Journal Vol 20 No 1 2019
P. 361
Page 10 of 10 Original Research
Data availability statement 15. Pizón-Irqui MC, Beck-Sagué CM, Malow RM. Disclosure of their HIV status to
infected children: A review of the literature. J Trop Pediatr. 2013;59(2):84–89.
Data sharing is not applicable to this article as no new data https://doi.org/10.1093/tropej/fms052
were created or analysed in this study. 16. Vreeman RC, McCoy BM, Lee S. Mental health challenges among adolescents
living with HIV. J Int AIDS Soc. 2017;20(3):1–10. https://doi.org/10.7448/IAS.20.
4.21497
17. Varni JW, Sherman SA, Burwinkle TM, Dickinson PE, Dixon P. The PedsQLTM
Disclaimer family impact module: Preliminary reliability and validity. Health Qual Life Out.
2004;2(1):55. https://doi.org/10.1186/1477-7525-2-55
The views expressed in the article are those of the authors 18. Varni JW. How young can children reliably and validly self-report their health-
and not an official position of the institution or funder. related quality of life?: An analysis of 8,591 children across age subgroups with
the PedsQLTM 4.0 Generic Core Scales. Health Qual Life Out. 2007;5(1):1. https://
doi.org/10.1186/1477-7525-5-1
References 19. Varni JW. Parent proxy-report of their childrenʼs health-related quality of life: An
analysis of 13,878 parents’ reliability and validity across age subgroups using the
PedsQLTM 4.0 Generic Core Scales. Health Qual Life Out. 2007;5(1):2. https://doi.
1. Joint United Nations Programme on HIV/AIDS (UNAIDS), AIDSinfo. Global org/10.1186/1477-7525-5-2
factsheets [homepage on the Internet]. 2016 [cited 2018 Apr 19]. Available from:
http://aidsinfo.unaids.org/?did=5581277ae9beccab3bd5a44e&r=world&t=2016 20. Statistics South Africa. Census 2011 statistical release P0301.4 [homepage on the
&tb=q&bt=undefined&ts=0,0&qla=G&qls=All Countries Internet]. Pretoria: Statistics South Africa; 2012 [cited 2018 Apr 19]. Available
from: https://www.statssa.gov.za/publications/P03014/P030142011.pdf
2. Joint United Nations Programme on HIV/AIDS (UNAIDS), AIDSinfo. Country
factsheets South Africa [homepage on the Internet]. 2016 [cited 2018 Apr 19]. 21. Quittner AL, Modi AC, Lemanek KL, Levers-Landis CE, Rapoff MA. Evidence-based
Available from: http://aidsinfo.unaids.org?did=5581277ae9beccab3bd5a44e&r= Assessment of Adherence to Medical Treatments in Pediatric Psychology. J Pediatr
world&t=2016&tb=q&bt=undefined&ts=0,0&qla=C&qls=ZAF Psychol. 2008;33(9):916–936. https://doi.org/10.1093/jpepsy/jsm064
3. Joint United Nations Programme on HIV/AIDS (UNAIDS). Global AIDS update 22. Kouyoumdjian FG, Meyers T, Mtshizana S. Barriers to disclosure to children
with HIV. J Trop Pediatr. 2005;51(5):285–287. https://doi.org/10.1093/tropej/
2016 [homepage on the Internet]. Geneva: UNAIDS; 2016 [cited 2018 Apr 19].
Available from: http://www.unaids.org/sites/default/files/media_asset/global- fmi014
AIDS-update-2016_en.pdf 23. Vreeman RC, Nyandiko WM, Ayaya SO, Walumbe EG, Marrero DG, Inui TS. The
4. Van Elsland, SL, Peters RPH, Grobbelaar N, et al. Paediatric ART adherence in Perceived Impact of Disclosure of Pediatric HIV Status on Pediatric Antiretroviral
Therapy Adherence, Child Well-Being, and Social Relationships in a Resource-
South Africa: A comprehensive analysis. AIDS Behav. 2018;23(2):475–488. https:// Limited Setting. AIDS Patient Care STDs. 2010;24(10):639–649. https://doi.
doi.org/10.1007/s10461-018-2235-x org/10.1089/apc.2010.0079
5. Osterberg L, Blaschke T. Adherence to medication. N Engl J Med. 2005;353(5): 24. Oberdorfer P, Puthanakit T, Louthrenoo O, Charnsil C, Sirisanthana V, Sirisanthana
487–497. T. Disclosure of HIVAIDS diagnosis to HIV-infected children in Thailand. J Paediatr
6. Muller AD, Bode S, Myer L, Stahl J, Von Steinbüchel N. Predictors of adherence Child Health. 2006;42(5):283–288. https://doi.org/10.1111/j.1440-1754.2006.
to antiretroviral treatment and therapeutic success among children in 00855.x
South Africa. AIDS Care. 2010;23(2):129–138. https://doi.org/10.1080/ 25. Kallem S, Renner L, Ghebremichael M, Paintsil E. Prevalence and Pattern
09540121003758523 of Disclosure of HIV Status in HIV-Infected Children in Ghana. AIDS Behav.
7. World Health Organization (WHO). Guideline on HIV disclosure counselling for 2011;15(6):1121–1127. https://doi.org/10.1007/s10461-010-9741-9
children up to 12 years of age [homepage on the Internet]. Geneva: World Health 26. Petersen I, Bhana A, Myeza N, et al. Psychosocial challenges and protective
Organization; 2011 [cited 2018 Apr 19]. Available from: http://apps.who.int/iris/ influences for socioemotional coping of HIV+ adolescents in South Africa. A
bitstream/10665/44777/1/9789241502863_eng.pdf qualitative investigation. AIDS Care. 2010;22(8):970–978. https://doi.org/
8. Gyamfi E, Okyere P, Enoch A, Appiah-Brempong E. Prevalence of, and barriers to 10.1080/ 09540121003623693
the disclosure of HIV status to infected children and adolescents in a district of 27. Biadgilign S, Deribew A, Amberbir A, Escudero HR, Deribe K. Factors associated
Ghana. BMC Int Health Hum Rights. 2017;17:8. https://doi.org/10.1186/s12914- with HIVAIDS diagnostic disclosure to HIV infected children receiving HAART- a
017-0114-6 multi-center study in Addis Ababa, Ethiopia. PLoS One. 2011;6(3):e17572. https://
9. National Department of Health South Africa. Disclosure guidelines for children and doi.org/10.1371/journal.pone.0017572
adolescents in the context of HIV, TB and non-communicable diseases [homepage 28. Demmer C. Experiences of families caring for an HIV-infected child in KwaZulu-
on the Internet]. Pretoria: South African national department of health; 2016 Natal, South Africa: An exploratory study. AIDS Care. 2011;23(7):873–879. https://
[cited 2018 Apr 19]. Available from: http://www.health.gov.za/index.php/hiv- doi.org/10.1080/09540121.2010.542123
aids-tb-and-maternal-and-child-health?download=1696:hiv-disclosure-guideline-
for-children-and-adolescent-2016-1 29. University of Cape Town. South African antiretroviral treatment guidelines
(children) 2016 – Second edition [homepage on the Internet]. Cape Town:
10. Vreeman RC, Gramelspacher AM, Gisore PO, Scanlon ML, Nyandiko WM. University of Cape Town; 2016 [cited 2018 Apr 19]. Available from: http://www.
Disclosure of HIV status to children in resource-limited settings: A systematic mic.uct.ac.za/sites/default/files/image_tool/images/51/Children%202016.pdf
review. J Int AIDS Soc. 2013;16(1):18466. https://doi.org/10.7448/IAS.16.1.18466 30. Myer L, Moodley K, Hendricks F, Cotton M. Healthcare Providers’ Perspectives on
11. Beima-Sofie KM, Brandt L, Hamunime N, et al. Pediatric HIV Disclosure Discussing HIV Status with Infected Children. J Trop Pediatr. 2006;52(4):293–295.
intervention improves knowledge and clinical outcomes in HIV-infected children https://doi.org/10.1093/tropej/fml004
in Namibia. J Acquir Immune Defic Syndr. 2017;75(1):18–26. https://doi.
org/10.1097/QAI.0000000000001290 31. Watermeyer J. ‘Are we allowed to disclose?’: A healthcare team’s experiences
of talking with children and adolescents about their HIV status. Health Expect.
12. Moodley K, Myer L, Michaels D, Cotton M. Paediatric HIV disclosure in South 2015;18(4):590–600. https://doi.org/10.1111/hex.12141
Africa-caregivers’ perspectives on discussing HIV with infected children. S Afr Med
J. 2006;96(3):201–204. 32. Madiba S, Mokgatle M. Health care workers’ perspectives about disclosure
to HIV-infected children; cross-sectional survey of health facilities in Gauteng
13. Reddi A, Leeper SC, Grobler AC, et al. Preliminary outcomes of a paediatric highly and Mpumalanga provinces, South Africa. Peer J. 2015;3:e893. https://doi.
active antiretroviral therapy cohort from KwaZulu-Natal, South Africa. BMC org/10.7717/peerj.893
Pediatr. 2007;7:13. https://doi.org/10.1186/1471-2431-7-13 33. Madiba S, Mokwena K. Caregivers’ barriers to disclosing the HIV diagnosis to
14. Murnane PM, Sigamoney S-L, Pinillos F, et al. Extent of disclosure: What infected children on antiretroviral therapy in a resource-limited district in South
perinatally HIV-infected children have been told about their own HIV status. AIDS Africa: A grounded theory study. AIDS Res Treat. 2012;2012:402–403. https://doi.
Care. 2017;29(3):378–386. https://doi.org/10.1080/09540121.2016.1224310 org/10.1155/2012/402403
http://www.sajhivmed.org.za 354 Open Access